Privacy Notice
Reflecting Disability: Representations of Disabled People in UK Children's Books
​This privacy notice tells you what to expect us to do with your personal information.
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Contact details
​Email: info@reflectingdisability.co.uk
What information we collect, use, and why
We collect or use the following information for research or archiving purposes:
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Names and contact details
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Personal information used for administration of research
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Personal information used for the purpose of research
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Records of consent, where appropriate
We also collect or use the following information for research or archiving purposes:
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Health information
Lawful bases and data protection rights
​Under UK data protection law, we must have a “lawful basis” for collecting and using your personal information. There is a list of possible lawful bases in the UK GDPR. You can find out more about lawful bases on the ICO’s website.​
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Which lawful basis we rely on may affect your data protection rights which are in brief set out below. You can find out more about your data protection rights and the exemptions which may apply on the ICO’s website:
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Your right of access - You have the right to ask us for copies of your personal information. You can request other information such as details about where we get personal information from and who we share personal information with. There are some exemptions which means you may not receive all the information you ask for. You can read more about this right here.
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Your right to rectification - You have the right to ask us to correct or delete personal information you think is inaccurate or incomplete. You can read more about this right here.
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Your right to erasure - You have the right to ask us to delete your personal information. You can read more about this right here.
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Your right to restriction of processing - You have the right to ask us to limit how we can use your personal information. You can read more about this right here.
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Your right to object to processing - You have the right to object to the processing of your personal data. You can read more about this right here.
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Your right to data portability - You have the right to ask that we transfer the personal information you gave us to another organisation, or to you. You can read more about this right here.
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Your right to withdraw consent – When we use consent as our lawful basis you have the right to withdraw your consent at any time. You can read more about this right here.
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If you make a request, we must respond to you without undue delay and in any event within one month.​
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To make a data protection rights request, please contact us using the contact details at the top of this privacy notice.​​​​
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Our lawful bases for the collection and use of your data
Our lawful bases for collecting or using personal information for research or archiving purposes are:
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Consent - we have permission from you after we gave you all the relevant information. All of your data protection rights may apply, except the right to object. To be clear, you do have the right to withdraw your consent at any time.
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Legitimate interests – we’re collecting or using your information because it benefits you, our organisation or someone else, without causing an undue risk of harm to anyone. All of your data protection rights may apply, except the right to portability. Our legitimate interests are:
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Knowing how lived experience and research influences the representation of disabled people in UK children's books leads to better and more authentic representation. Authentically inclusive books lead to understanding and welcoming of difference, and benefits society as a whole in the long term. Asking book creators to share information that they choose to and feel is relevant to the representation in their books provides insight into how that impacts the representation. Additionally, it would be inappropriate for anyone other than the disabled person to share information about their personal lived experience, which is why book creators are given the option to share as much or little as they choose, or nothing at all. Participants are not obliged to provide this information, but are given the option to share what they choose.
Where we get personal information from
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​Directly from you
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Publicly available sources
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Suppliers and service providers
How long we keep information
​Please see our Data Retention Policy
Who we share information with
​​Data processors​​​​​​
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Document Storage and Management: Google Drive
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This data processor does the following activities for us: They store the information
Others we share personal information with
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Professional consultants
How to complain
​​If you have any concerns about our use of your personal data, you can make a complaint to us using the contact details at the top of this privacy notice.
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If you remain unhappy with how we’ve used your data after raising a complaint with us, you can also complain to the ICO.
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The ICO’s address:
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Information Commissioner’s Office
Wycliffe House
Water Lane
Wilmslow
Cheshire
SK9 5AF
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Helpline number: 0303 123 1113
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Last updated
​5 November 2024